Please go away. Leave people with M.E. alone. We see you now and nearly every other rational, responsible scientist sees you too.
You are abusive, ego-driven little children who cannot deal with reality so you are trying to bend it to your will. You bait our community with the hand-wringing pretense of “think of the patients”, refusing to accept that science has moved on, then wail and cry at anyone who will listen if it dares to question your point of view.
And don’t think we don’t know how deviously self-fulfilling it is to offer a way out of this disease that only works when someone else (not you) is responsible for their recovery (us), so when it invariably doesn’t work, you can point the finger and say we did it wrong. How convenient. Then when we, from our powerful positions of living death and profound disability, call you out – the supposed victims- who sit on many and various influential boards and edit globally recognised science journals from your university towers, you accuse us of picking on you, stifling your voice, which you seem to think is the only voice that has the answer. Like, if only we listened to your wisdom, all would be well; if only we just did as you said, then you could save us. But because you cannot satisfy your obvious hero/saviour complex, you say we just won’t listen, we don’t want to get better and then we abuse you. You spread stories that we, a community mostly house or bed-bound, energy-deprived and exertion-punished, scare you and bully you.
M.E. is a biomedical disease of the systems of the body. Blood, tissue, cells. The same as many other diseases, and yet you are still trying to grab onto us for some reason, like a whingeing toddler refusing to give up someone else’s toy they stole at playtime. You can bet if you treated people with M.S, Parkinson’s, Lupus or the many forms of cancer the same as you do us, you would be in for a world of salty lanugauge from them too for you to boo-hoo about.
So just grow up and stop it. Move on and leave very sick people alone to get the help from the many scientists doing their damndest to really help our community. Those who provide peer-reviewed evidence that stands up to scrutiny, those that show compassion to our community when someone is defensive and gives them a hard time, recognising that is exactly what abused people do when they have been abused for so long.
We don’t want you. And, as has been proven time and time again, we don’t need you. If you cannot see that then you may need some of the therapy you are trying to sell to deal with your cognitive dissonance that you can’t seem to get past. But if you can see, remember that sacred oath you signed up to. Tormenting people on social media with your minimising terms you know fine well will trigger them, or fixating on fatigue and outdated definitions, or trying to turn people against a struggling group of seriously ill humans, are some very clear examples of HARM you pledged not to do.
We see you. We know what you are up to, so for love of of every poor soul living or since needlessly passed with this life-sucking monster of a disease,
Leave. Us. Alone.
Writing and M.E. 