Kirstie Sivapalan
M.E. Life, politics and social angst Not much time and/or energy? Go straight to latest entry here. Each entry is usually no more than 2-3 mins to read. What is a mini-roll? Inspired by the UK "mini" Budget, I'm starting a series of "mini" blog posts about living with M.E. The difference will be that… Continue reading Mini-roll
It's about Time Dear M.E. Ally This blog post is for you, and it's about Time. Time as something finite, something precious and something unequally distributed amongst us, especially pwME. (The abbreviation pwME is a shorthand for people with M.E. used on socials which I will be using here). Settle in as it’s long and… Continue reading Dear M.E. Ally
A Winter Solstice Prayer for the sick Winter Solstice dawn 22 December 2021 Let me streak the sky gold with my fingers thenBreathe in its frosted kiss to quench my lungs.Let the brightening Sun soak through my skinAnd Light be all throughout reflected, returning the forces that nourish my frame.Yet, let the cool of the… Continue reading Return of the Sun
Did you know in the UK that if you got sick and your doctor recommended a non-pharmaceutical therapy that made you worse there is currently NO mechanism to report to this? If they prescribe drugs that cause further sickness then we have the Yellow Card reporting system but if it's physical exercise or psychotherapy which… Continue reading Shake it UP
Warning: This post contains my thoughts on vaccine harm following the covid-19 vaccine. It is neither anti nor pro. I remain committed to the protection of public health through social distancing, mask-wearing and immunisation, and I would have a further dose of a vaccine myself if one was provided which does not lead to the… Continue reading Collateral damaged
I couldn't sleep. I had insomnia at both ends of the night, one of the features of M.E that I struggle with the most. I finally gave up around 6am and, with my stomach also awake, I decided to get up, go downstairs, make myself a cup of tea and treat myself to some ginger… Continue reading Treasure
I don't have an invisible disabilty, I have a disability visibly ignored.You might, if you want, see it in my eyes if you look close enough; in my voice, with a keen ear. There's even, sometimes, a smell. Sickly sweet. But yes, there are no obvious signs - no chair nor stick, and likely a… Continue reading Undercurrent
Image reads: THEIR FINAL PERFORMANCE 1.1. Who better than those who profess to know minds to twist our actions? Those that have plundered the void to plug with their confidence (tricks). To keep those of us blighted by secrets locked tight in our cells bombarded by their (un)veiled attacks. To call us the aggressors in their… Continue reading Their Final Performance: ProtestNICE4ME
CAUTION: I am fairly new to this kind of advocacy so apologies that I published this before adding this caution. This blog post contains real experiences of people who have been harmed by a therapeutic intervention known as Graded Exercise Therapy and the stories could be upsetting and may trigger feelings of trauma, loss and… Continue reading GET Lost
(This is the third part of my M.E story. If you haven’t yet, I’d recommend you read parts one and two, here and here.) In the early part of 2010 I packed my bags and headed to Peru. I had decided to have one last adventure before hitting my forties and quickly found myself 3000… Continue reading ME and the Virus that had never really gone
Writing and M.E. 