Advocacy, creative writing, M.E, Poetry, storytelling

My Historical Record

I write not only for immediate engagment and the comfort of a sense of community, but for the audience of One, who will find words like mine in the future, who will piece together this story of greed and global tragedy for another generation - far from now - to understand.  Archeologists of the future,… Continue reading My Historical Record

Advocacy, M.E, Poetry

Wayside Abstractions

A short poem about what it feels like to be immunocompromised and left behind post- pandemic From BBC interview with Dr Fauci August 2023 Poppies are used to symbolise death through conflict; they grow tall and wild by the wayside. Their red petals signify the blood we all share: people lost to war, Great and… Continue reading Wayside Abstractions

community, creative writing, M.E, Poetry

Their Final Performance: ProtestNICE4ME

Image reads: THEIR FINAL PERFORMANCE 1.1.   Who better than those who profess to know minds to twist our actions? Those that have plundered the void to plug with their confidence (tricks). To keep those of us blighted by secrets locked tight in our cells bombarded by their (un)veiled attacks. To call us the aggressors in their… Continue reading Their Final Performance: ProtestNICE4ME

creative writing, Hope, Social change, Spirituality

Mission 2021

Image reads: Mission 2021: If my liberty means the incarceration of others, I am not free. If my prosperity means the poverty of others, I have no riches. If my success means the failure of others, I have not achieved. If my wellbeing means the sickness of others, I cannot heal. Until we are all… Continue reading Mission 2021

Poetry, Politics

FreeDumb Day

Happy FoolishRhetoricExpeditesExcessDeathsOf theMasses Day 19th July, #FreedumbDay is trending  and England has dropped all restrictions. The pandemic is over here as our Government said so. Or rather that is the subtle message that is carried on its waves. They have also told people to take personal responsibility and use caution but since it took charging… Continue reading FreeDumb Day

creative writing, M.E, Poetry, words

P/o/EM

The Kings Library at the British Library, one of my sacred spaces. Photo: K Sivapalan 2018 Free to use I wrote the poem below twelve days ago now. People with M.E. (Myalgic Encephalomyelitis) will recognise the play on a familiar term we use in my title - PEM, which is short for Post-Exertional Malaise. This… Continue reading P/o/EM

creative writing, M.E, wellbeing

If only

I was just starting to stir this morning. Not quite asleep, not quite awake, lying in the world in between. I felt nothing. No pain, no tiredness, for a moment I thought I had recovered and allowed space to entertain the feeling. But I took a breath and time moved on and it all came… Continue reading If only

Friendship, M.E, Poetry

Ode to a Bad Day #2

I am going through some old poems and revising a few, which is as much as I can muster right now mid-relapse. I wrote this one two years ago when I thought I was having a bad day. Perspective can be a wonderful thing and it can also be brutal as I look back today… Continue reading Ode to a Bad Day #2

Consumption, M.E, mental health

Defective

New poem for ME Awareness Month 2021. I wanted to write something that reflects the frustration of being dismissed, ignored & gaslighted because we cannot be "good productive members" of a consumerist economy. Seems apt to post this on International Workers Day too. For more information on living with M.E or caring for someone with… Continue reading Defective

change, Hope, Poetry, storytelling

The Frog and the Scorpion Part II

It maybe part of our nature but we can still change. *** The frogs and the scorpions gathered side by side as they watched their beloved kin sink beneath the rushing flow of the river. The frogs bowed their heads and turned away from the scorpions. “Please!” said the scorpions. “Do not leave us. Now… Continue reading The Frog and the Scorpion Part II