Kirstie Sivapalan
Back in the oh-so-innocent days of July 2019 when we thought the world was already mad but we were extremely very wrong, I found myself wondering about the Archangels. Whether they were ever going to make an appearance and come and help out with their human charges who didn't seem to be able to get… Continue reading The continuing adventures of Mikey and Cam: Angel Squad 4 – Mikey goes AWOL
I am unsettled today. Disturbed even. The level of intolerance is growing and I find myself asking the question, a common one in what was my HR profession for anyone raising a grievance, what outcome are people looking for? I read a piece on Substack this morning. An article by the journalist Ian Dunt who… Continue reading The Destiny of Intolerance
I wrote a poem and made it into a picture to give it added dimension (no pun intended). It's been a long while since I have managed anything creative. M.E. strips you of everything.Be interesting to see if anyone can spot what is different about the picture though as well as any other thoughts or… Continue reading Stay
Democracy died in the headlinesTruth has been twisted out of existence and we are in the time of stories now So tell your story. Tell it loud and proud for as long as you can.
Ten years ago today I started a blog. I had decided now was the time to follow my long held dream of opening my own crystal shop. As part of that plan I aimed to write and publish a blog post every day for a year about why I wanted to and how I was… Continue reading Ten Years in Time
Please go away. Leave people with M.E. alone. We see you now and nearly every other rational, responsible scientist sees you too. You are abusive, ego-driven little children who cannot deal with reality so you are trying to bend it to your will. You bait our community with the hand-wringing pretense of "think of the… Continue reading To all FND/BPS opinion piece generators
I write not only for immediate engagment and the comfort of a sense of community, but for the audience of One, who will find words like mine in the future, who will piece together this story of greed and global tragedy for another generation - far from now - to understand. Archeologists of the future,… Continue reading My Historical Record
A short poem about what it feels like to be immunocompromised and left behind post- pandemic From BBC interview with Dr Fauci August 2023 Poppies are used to symbolise death through conflict; they grow tall and wild by the wayside. Their red petals signify the blood we all share: people lost to war, Great and… Continue reading Wayside Abstractions
Help. What is being helpful? I contemplated this after issuing another plea to people for help with advocacy who do not live with energy limiting/exertion punishing conditions such as M.E. and now Long Covid. I then posted a vent on Twitter with this analogy which I have since developed: Asking for help from a person… Continue reading Sink or Swim: How to help people with M.E, helpfully.
I really wanted to write a wee mini-roll post today. For a while now I've been thrashing about in the murky seas of Twitter, now the unenigmatic "X", as well as the pristine, sanitised swimming pool that is Zuck's Threads, so it seemed a good time to do an update. Then PEM hit. I mean,… Continue reading Mini-Roll: PEM, plans and the cut-and-paste Press
Writing and M.E. 