It's about Time Dear M.E. Ally This blog post is for you, and it's about Time. Time as something finite, something precious and something unequally distributed amongst us, especially pwME. (The abbreviation pwME is a shorthand for people with M.E. used on socials which I will be using here). Settle in as it’s long and… Continue reading Dear M.E. Ally
Category: community
Undercurrent
I don't have an invisible disabilty, I have a disability visibly ignored.You might, if you want, see it in my eyes if you look close enough; in my voice, with a keen ear. There's even, sometimes, a smell. Sickly sweet. But yes, there are no obvious signs - no chair nor stick, and likely a… Continue reading Undercurrent
Their Final Performance: ProtestNICE4ME
Image reads: THEIR FINAL PERFORMANCE 1.1. Who better than those who profess to know minds to twist our actions? Those that have plundered the void to plug with their confidence (tricks). To keep those of us blighted by secrets locked tight in our cells bombarded by their (un)veiled attacks. To call us the aggressors in their… Continue reading Their Final Performance: ProtestNICE4ME
Gaslight in waiting
You told me to wash my hands and yet to raise them high in wanton communion, You ridiculed us as turkeys lurking and squawking whilst you traded your fortune, You told us it wouldn't matter if we were close, and we inhaled it in, deep. I did. For a whileI stopped, worrying in hope of… Continue reading Gaslight in waiting
Your beauty radiates.
For the Youtube version please click here. My latest poem, below, which follows on from my most recent post, is a reflection on the messages we receive every day about who we should be and what we should value - money, fame, power, success. All of these messages, and the constant bombardment of such, can… Continue reading Your beauty radiates.
Shouting into the tornado
The following poem was inspired by the growing mass of voices on Twitter. I asked myself, what is the essence of the message behind the words. What is it we want people to hear. Included in this, is my own voice. This is what I saw... Can you see me? Can you help me? Can… Continue reading Shouting into the tornado
Winged
What if we are angels in training? Each a step closer to our wings Although these wings are not feathery and light They are made of the strongest substance in the Universe, forged by experience and powerful learning They are every colour of our emotions They are soft to touch after lifetimes of abrasion Yet… Continue reading Winged
The formula for Gratitude
Want to know what gratitude feels like? Take away the every day... Take away getting ready for work Take away opening jars, making tea, standing while it brews Take away hats, scarves, sunglasses, flipflops Take away cosy chats, feisty debates, gossiping girls Take away walking, running, cycling, swimming Take away everything you never knew you… Continue reading The formula for Gratitude
Sabre tooth post-truth
Our Modern life is full of Sabre-tooth tigers Warring of clans and poisonous spiders Dirty dank water and cavernous pits Furious fires and razor sharp cliffs Or so our brain thinks, accustomed to caution Hard wired to react, all out of proportion A disease of our time, a shameful admission Anxiety and stress that we… Continue reading Sabre tooth post-truth
Her First Children
Her temper had finally cooled. The pools of molten lava lay without structure or form in her belly. Now she could travel deep within and create. With each thought, each feeling, each dream, new structures took shape. She wondered about whether there were any of her kind out there, she dreamed of love and companionship,… Continue reading Her First Children