Kirstie Sivapalan
M.E. Life, politics and social angst Not much time and/or energy? Go straight to latest entry here. Each entry is usually no more than 2-3 mins to read. What is a mini-roll? Inspired by the UK "mini" Budget, I'm starting a series of "mini" blog posts about living with M.E. The difference will be that… Continue reading Mini-roll
It's about Time Dear M.E. Ally This blog post is for you, and it's about Time. Time as something finite, something precious and something unequally distributed amongst us, especially pwME. (The abbreviation pwME is a shorthand for people with M.E. used on socials which I will be using here). Settle in as it’s long and… Continue reading Dear M.E. Ally
(This is the third part of my M.E story. If you haven’t yet, I’d recommend you read parts one and two, here and here.) In the early part of 2010 I packed my bags and headed to Peru. I had decided to have one last adventure before hitting my forties and quickly found myself 3000… Continue reading ME and the Virus that had never really gone
The Kings Library at the British Library, one of my sacred spaces. Photo: K Sivapalan 2018 Free to use I wrote the poem below twelve days ago now. People with M.E. (Myalgic Encephalomyelitis) will recognise the play on a familiar term we use in my title - PEM, which is short for Post-Exertional Malaise. This… Continue reading P/o/EM
I might as well live in Timbuktu As far as I am - from me to you. I might as well live in San Salvador Confined to sofas and stuck indoors. I might as well live in Kaula Lumpur Dreaming of dancing away til four, Or even til two, but now, I might as well… Continue reading Less travelled
You can gather from the title today is not a good day. Yesterday wasn't great either but today, has definitely been what those of us with mild-moderate M.E call a Bad Day. I wanted to write today. I also wanted to do some housework. I wanted to go to the library and maybe stop off… Continue reading Ode to a Bad Day
Writing and M.E. 