Please go away. Leave people with M.E. alone. We see you now and nearly every other rational, responsible scientist sees you too. You are abusive, ego-driven little children who cannot deal with reality so you are trying to bend it to your will. You bait our community with the hand-wringing pretense of "think of the… Continue reading To all FND/BPS opinion piece generators
Category: Advocacy
My Historical Record
I write not only for immediate engagment and the comfort of a sense of community, but for the audience of One, who will find words like mine in the future, who will piece together this story of greed and global tragedy for another generation - far from now - to understand. Archeologists of the future,… Continue reading My Historical Record
Wayside Abstractions
A short poem about what it feels like to be immunocompromised and left behind post- pandemic From BBC interview with Dr Fauci August 2023 Poppies are used to symbolise death through conflict; they grow tall and wild by the wayside. Their red petals signify the blood we all share: people lost to war, Great and… Continue reading Wayside Abstractions
Sink or Swim: How to help people with M.E, helpfully.
Help. What is being helpful? I contemplated this after issuing another plea to people for help with advocacy who do not live with energy limiting/exertion punishing conditions such as M.E. and now Long Covid. I then posted a vent on Twitter with this analogy which I have since developed: Asking for help from a person… Continue reading Sink or Swim: How to help people with M.E, helpfully.
Mini-roll
M.E. Life, politics and social angst The posts below are now an archive. Latest entries for what is now Mini-roll 2.0 can be found in Latest Work. Each entry is usually no more than 2-3 mins to read. What is a mini-roll? Inspired by the UK "mini" Budget, I'm starting a series of "mini" blog… Continue reading Mini-roll
Shake it UP
Did you know in the UK that if you got sick and your doctor recommended a non-pharmaceutical therapy that made you worse there is currently NO mechanism to report to this? If they prescribe drugs that cause further sickness then we have the Yellow Card reporting system but if it's physical exercise or psychotherapy which… Continue reading Shake it UP
Writing and M.E. 