Kirstie Sivapalan
I really wanted to write a wee mini-roll post today. For a while now I've been thrashing about in the murky seas of Twitter, now the unenigmatic "X", as well as the pristine, sanitised swimming pool that is Zuck's Threads, so it seemed a good time to do an update. Then PEM hit. I mean,… Continue reading Mini-Roll: PEM, plans and the cut-and-paste Press
Last week and the weekend held two big events for me: M.E. Awareness Week and Eurovision. For the former, I had written a fictional story about living with what is now firmly moderate M.E. I also waded back in to the increasingly scummy waters of the bird site where a lot of the M.E. community… Continue reading Mini-Roll: Social noise and evil genius
It was there the last time she looked. But this time - Nothing. Where the hell did it go? Where did it all go? She stared at the moulded plastic thing on the counter: gleefully orange, punctured with rows of neat little holes in and around its curved bottom. Cauliflower? Something like that but not… Continue reading Drained – a short story for M.E. Awareness Week 2023 (5 min read)
The Kings Library at the British Library, one of my sacred spaces. Photo: K Sivapalan 2018 Free to use I wrote the poem below twelve days ago now. People with M.E. (Myalgic Encephalomyelitis) will recognise the play on a familiar term we use in my title - PEM, which is short for Post-Exertional Malaise. This… Continue reading P/o/EM
I might as well live in Timbuktu As far as I am - from me to you. I might as well live in San Salvador Confined to sofas and stuck indoors. I might as well live in Kaula Lumpur Dreaming of dancing away til four, Or even til two, but now, I might as well… Continue reading Less travelled
Writing and M.E. 