Kirstie Sivapalan
There are three days that exist for me between January and April: my husband's birthday, Imbolc (aka St Bridget's day where I do some hippy crystal-meditationy stuff) and my birthday. The rest of the days are just that: REST. If I do get to do anything outside of these days it's a bonus. I have… Continue reading Mini-Roll 2.0 – What a day this year has been
I don't have an invisible disabilty, I have a disability visibly ignored.You might, if you want, see it in my eyes if you look close enough; in my voice, with a keen ear. There's even, sometimes, a smell. Sickly sweet. But yes, there are no obvious signs - no chair nor stick, and likely a… Continue reading Undercurrent
CAUTION: I am fairly new to this kind of advocacy so apologies that I published this before adding this caution. This blog post contains real experiences of people who have been harmed by a therapeutic intervention known as Graded Exercise Therapy and the stories could be upsetting and may trigger feelings of trauma, loss and… Continue reading GET Lost
(This is the third part of my M.E story. If you haven’t yet, I’d recommend you read parts one and two, here and here.) In the early part of 2010 I packed my bags and headed to Peru. I had decided to have one last adventure before hitting my forties and quickly found myself 3000… Continue reading ME and the Virus that had never really gone
"No poly. I feel like a bag of shit. Didn't surface until afternoon. Can hardly eat. Can hardly move my eyes." This was an entry in my diary, one of those five-year diaries mainly girls of my day would be gifted for Christmases or birthdays. In my case it was my 14th Christmas, an idea… Continue reading M.E & The Virus that never leaves
Writing and M.E. 