Kirstie Sivapalan
It's about Time Dear M.E. Ally This blog post is for you, and it's about Time. Time as something finite, something precious and something unequally distributed amongst us, especially pwME. (The abbreviation pwME is a shorthand for people with M.E. used on socials which I will be using here). Settle in as it’s long and… Continue reading Dear M.E. Ally
I was just starting to stir this morning. Not quite asleep, not quite awake, lying in the world in between. I felt nothing. No pain, no tiredness, for a moment I thought I had recovered and allowed space to entertain the feeling. But I took a breath and time moved on and it all came… Continue reading If only
"No poly. I feel like a bag of shit. Didn't surface until afternoon. Can hardly eat. Can hardly move my eyes." This was an entry in my diary, one of those five-year diaries mainly girls of my day would be gifted for Christmases or birthdays. In my case it was my 14th Christmas, an idea… Continue reading M.E & The Virus that never leaves
It's been a tough week. That is all I have been able to articulate to anyone who has asked. Five words that could be unpicked for days before finding the knot at the heart of it all. Or, the Not in my case. Word play aside, it is time for me to share. As… Continue reading Blood Right
(I had to add this poem as a picture as WordPress helpfully kept removing my spaces! Note- WordPress, you may need to consider this feature for the poetic among us) The Perils of Change This poem came to me in one of those midnight inspiration moments. The last 6-9 months have been extremely wearing,… Continue reading The perils of change
Words are flying around my head None will take root and find meaning Feelings are sent tumbling To a place without words There are no pictures either Just half-words and muddled phrases Thrown up from deep recesses Gushing into my mind I can grasp neither heads nor tail Whizz banging articulations fade Before I can… Continue reading Mind – Full
It's easy to be full of the Divine when the warmth of the sun dazzles your eyes But when your heart scatters into pieces across the Universe What then of your faith? What then of angels with soft wings? What then of Gods and Goddesses, aspects and effigies - Totems and trinkets that keep us… Continue reading Faithlessful
Want to know what gratitude feels like? Take away the every day... Take away getting ready for work Take away opening jars, making tea, standing while it brews Take away hats, scarves, sunglasses, flipflops Take away cosy chats, feisty debates, gossiping girls Take away walking, running, cycling, swimming Take away everything you never knew you… Continue reading The formula for Gratitude
Our Modern life is full of Sabre-tooth tigers Warring of clans and poisonous spiders Dirty dank water and cavernous pits Furious fires and razor sharp cliffs Or so our brain thinks, accustomed to caution Hard wired to react, all out of proportion A disease of our time, a shameful admission Anxiety and stress that we… Continue reading Sabre tooth post-truth
Normally I am Little Miss Hopeful, relentlessly optimistic about humanity and our future. Some days, days like the day I wrote the first "movement" of this poem, drops of despair and confusion trickle through and for a while it becomes that much harder to find the light. I wrote Wake after reading my morning news,… Continue reading Wake
Writing and M.E. 