Kirstie Sivapalan
It's about Time Dear M.E. Ally This blog post is for you, and it's about Time. Time as something finite, something precious and something unequally distributed amongst us, especially pwME. (The abbreviation pwME is a shorthand for people with M.E. used on socials which I will be using here). Settle in as it’s long and… Continue reading Dear M.E. Ally
New poem for ME Awareness Month 2021. I wanted to write something that reflects the frustration of being dismissed, ignored & gaslighted because we cannot be "good productive members" of a consumerist economy. Seems apt to post this on International Workers Day too. For more information on living with M.E or caring for someone with… Continue reading Defective
I could be content, if, I allowed myself to be. I could not write lists or set life goals, if I was happy, just Sitting under a big old oak tree. * I could watch the blackbird, (or is it a thrush?) as she Waits, fluffed feathers dripping, watching for the worms to hear that… Continue reading The Bird gets the Worm
It has took me a long while to appreciate silence. Our minds become accustomed to a level of noise which we don't realise becomes comforting, sending us signals that life is how we would consider normal. I used to love the distinct whirring and wheezing of the Jubilee line, the trilling of the beeps at… Continue reading The Cloak of Silence
No poem or funny story for you. Just some thoughts and a plan... It's been a difficult week Less By Thursday the combination of the confirmation of that individual as leader of the Conservative Party, which supposedly makes him my PM, the way above average or even peak temperature that day and M.E symptoms were… Continue reading Only love
(I had to add this poem as a picture as WordPress helpfully kept removing my spaces! Note- WordPress, you may need to consider this feature for the poetic among us) The Perils of Change This poem came to me in one of those midnight inspiration moments. The last 6-9 months have been extremely wearing,… Continue reading The perils of change
It's easy to be full of the Divine when the warmth of the sun dazzles your eyes But when your heart scatters into pieces across the Universe What then of your faith? What then of angels with soft wings? What then of Gods and Goddesses, aspects and effigies - Totems and trinkets that keep us… Continue reading Faithlessful
Our Modern life is full of Sabre-tooth tigers Warring of clans and poisonous spiders Dirty dank water and cavernous pits Furious fires and razor sharp cliffs Or so our brain thinks, accustomed to caution Hard wired to react, all out of proportion A disease of our time, a shameful admission Anxiety and stress that we… Continue reading Sabre tooth post-truth
Sadness is the colour blue. That shade of midnight. When the Sun has gone as deep as it can go and the faintest stars blaze like the strongest suns. Happiness is Yellow. Bright buttercup yellow. Like the swimming costume I wore when I was five playing in our paddling pool keeping cool in the heatwave… Continue reading Sadness is the colour blue
Normally I am Little Miss Hopeful, relentlessly optimistic about humanity and our future. Some days, days like the day I wrote the first "movement" of this poem, drops of despair and confusion trickle through and for a while it becomes that much harder to find the light. I wrote Wake after reading my morning news,… Continue reading Wake
Writing and M.E. 