Kirstie Sivapalan
I wrote a poem and made it into a picture to give it added dimension (no pun intended). It's been a long while since I have managed anything creative. M.E. strips you of everything.Be interesting to see if anyone can spot what is different about the picture though as well as any other thoughts or… Continue reading Stay
As a recent podcast obsessive, I am very much looking forward to adding this to my list of regular listens. A great idea and great premise for exploring the reality of living with M.E. Will let Daniel explain further...
M.E. Life, politics and social angst The posts below are now an archive. Latest entries for what is now Mini-roll 2.0 can be found in Latest Work. Each entry is usually no more than 2-3 mins to read. What is a mini-roll? Inspired by the UK "mini" Budget, I'm starting a series of "mini" blog… Continue reading Mini-roll
It's about Time Dear M.E. Ally This blog post is for you, and it's about Time. Time as something finite, something precious and something unequally distributed amongst us, especially pwME. (The abbreviation pwME is a shorthand for people with M.E. used on socials which I will be using here). Settle in as it’s long and… Continue reading Dear M.E. Ally
A Winter Solstice Prayer for the sick Winter Solstice dawn 22 December 2021 Let me streak the sky gold with my fingers thenBreathe in its frosted kiss to quench my lungs.Let the brightening Sun soak through my skinAnd Light be all throughout reflected, returning the forces that nourish my frame.Yet, let the cool of the… Continue reading Return of the Sun
I couldn't sleep. I had insomnia at both ends of the night, one of the features of M.E that I struggle with the most. I finally gave up around 6am and, with my stomach also awake, I decided to get up, go downstairs, make myself a cup of tea and treat myself to some ginger… Continue reading Treasure
I don't have an invisible disabilty, I have a disability visibly ignored.You might, if you want, see it in my eyes if you look close enough; in my voice, with a keen ear. There's even, sometimes, a smell. Sickly sweet. But yes, there are no obvious signs - no chair nor stick, and likely a… Continue reading Undercurrent
Image reads: THEIR FINAL PERFORMANCE 1.1. Who better than those who profess to know minds to twist our actions? Those that have plundered the void to plug with their confidence (tricks). To keep those of us blighted by secrets locked tight in our cells bombarded by their (un)veiled attacks. To call us the aggressors in their… Continue reading Their Final Performance: ProtestNICE4ME
The Kings Library at the British Library, one of my sacred spaces. Photo: K Sivapalan 2018 Free to use I wrote the poem below twelve days ago now. People with M.E. (Myalgic Encephalomyelitis) will recognise the play on a familiar term we use in my title - PEM, which is short for Post-Exertional Malaise. This… Continue reading P/o/EM
(This is the second part of three of my story of M.E. If you haven’t yet, I’d recommend you read part one here) 2nd Edit: Oops. I managed to forget a very significant event in my life, or maybe block it out, due to my desire to finish this piece and rest. I've added it now.… Continue reading M.E and the virus that went away…for a while… (maybe)
Writing and M.E. 